The Fred and Emy Story....

Fred and Emy were married in 1992. They had their first beautiful baby girl in 1993. Hannah would now be 16 years old. She passed away July of 2000. She had Metachromatic Leukodystrophy (MLD). Fred and Emy didn't know she had anything wrong with her the first several years of her life. Emy and Fred went to a genetic counselor who told them both Fred and Emy were carriers and that their children had a 25% chance of getting the disease. By this time they had 3 children. Two out of the three had the disease. They had decided they were done having kids, when they found out they were pregnant with triplets: Rachel, Rebekah, and Ryan were born in August 0f 2000 and all 3 had the disease. Fred and Emy moved to Salt Lake City after their birth to be close to Primary Children's Hospital's Bone Marrow Transplant Unit in hopes to help their babies.
Hannah passed away this same year at the age of 7, the viewing was the night of Emy's Birthday. Three weeks after Hannah died, Ryan was taken off life support. They have 3 beautiful amazing children in wheel chairs who continue to fight their battle with MLD. Jack their second child is the only one without the disease. I have never seen a more charitable, amazing, and selfless brother and son. Fred and Emy are two wonderful, loving parents. We are all grateful for them and so grateful for the way they live their lives. They are an example and inspiration to all who know them.